Walking With Grandmpa [my father and grand-daughter]

Walking With Grandmpa [my father and grand-daughter]
"I like walking with granpa his steps are short like mine." (dedicated to my dad who passed 4/1/10)
Showing posts with label Meniere's Disease. Show all posts
Showing posts with label Meniere's Disease. Show all posts

Sunday, May 19, 2013

Meniere's Disease

I have some really good news, I know it sounds odd to be happy about being diagnosed with a disease but when you know there is a problem and you don't know how to make it better or understand why its happening, its almost like there is a Dr Jekyll/Mr Hyde waiting inside waiting to rear his ugly head and there is nothing you can do to stop it! Sorry this is rather a long post..... After going to doctor after doctor for the last 25 years I just gave up thinking I would ever find out what was wrong with me! Sure I new the important things I did not have a brain tumor, stroke etc....but no reason why I was having the debilitating vertigo attracts. When they occur they come on strong drop me to my knees I break out in a sweat , room spinning violently, throwing up cannot move have to remain still and they last between 30 minutes to 4 hours. The attacks control my life, since I did not know when\why they would occur I stopped driving in the city, in a store I always know where the exit door is, have lost job after job, I don't like crowds and just prefer to be home (home is my safe zone). The ENTs I went to would have me move my head left to right saw no rapid eye movement send me home with `happens again come back`  then when it happens again I have someone call (I can not move) only to be told they could not see me for 3 weeks! See where I am headed with this.....Dr can't diagnose me unless they see what's happening, when its happening they can't fit me in for weeks and the attacks usually only last one day! It was like a broken record sad to say. Anyway I decided to give it one more try (had been 6 years since last ENT Dr). I found a ENT that is a nurse practitioner, she had me do the usual head movements nothing happened, I was ready with the happens again routine...... But she said let's try an air pressure test, it took about an hour and in that little hour she changed my world! :) she said I have meniere`s disease (this is not something you die from). I am now on a salt restricted diet, no caffeine, no pre-packaged foods and a water pill once a day. This will not stop the attacks but it will make them less severe and that is all I could have wished for. She has also set me up with a Dr that only sees patients with meniere`s in August and when I spoke to him he said he may be able to extend the attacks to years in between instead of every couple months, or I may never have another that is music to my ears! Also the side effects from my diet (good)....I have lost 16 pounds, the pressure feeling in my ears is gone, (felt like swimmers ear) I don't feel foggy headed and I think clearer. The...I won't say bad, but the hard part is I never realized how much salt is in pre-packaged foods and trying to cook without salt and still taste good is even harder. I do make most of our food from scratch, but did indulge sometimes in prepackaged, but no more! I don't mean to sound like I am complaining, if this makes my world better than I will do whatever it takes. :) I wish 25 years ago or even 10 one of the Drs I went to would have just gone that extra step.......I wonder how many patients go to the dr over the years only to also be pushed aside and fall into the cracks? It also makes me wonder/worry about the new health care proposal will Drs get even more over loaded and patent's even more a black and white piece of paper?..... I know better late than never and I thank God I finally got a diagnosis! but when you are scared and what scares you goes on for years being diagnosed earlier would have been so sweet! :)
I thought over and over about posting this and I realized if I can help someone else that does not know what is happening to them and maybe they will decide to try one more time to go to the Dr, even if they have also previously went many times before it would be worth it, then again maybe there is someone out there that can also help me! :)